Видео ютуба по тегу Family Support For Rare Disease

How to support a family who has a rare disease diagnosis
How to support a family who has a rare disease diagnosis
Редкое заболевание: история семьи
Редкое заболевание: история семьи
Track 1: Support for the Rare Disease Family Caring for Siblings of Kids with Rare Diseases
Track 1: Support for the Rare Disease Family Caring for Siblings of Kids with Rare Diseases
Families support each other after rare diagnosis
Families support each other after rare diagnosis
Rare Disease Day 2022 - Meet the ASUK Family Support Team
Rare Disease Day 2022 - Meet the ASUK Family Support Team
Parents struggling to support baby with rare disease
Parents struggling to support baby with rare disease
Meet the Rare Disease Day 2025 Family Foundations
Meet the Rare Disease Day 2025 Family Foundations
Parents Driving Cures: Meet The FOXG1 Research Foundation
Parents Driving Cures: Meet The FOXG1 Research Foundation
Our Support for Rare Disease
Our Support for Rare Disease
Rare Disease Challenges Support for Patients & Families
Rare Disease Challenges Support for Patients & Families
Andie's Story - Living with a Rare Disease
Andie's Story - Living with a Rare Disease
Contact: how we help rare disease patients and families - Rachel Gibson
Contact: how we help rare disease patients and families - Rachel Gibson
Bringing new Hope to Families Living with Rare Disease
Bringing new Hope to Families Living with Rare Disease
Psychological support for families dealing with rare diseases - David Gosar, PhD
Psychological support for families dealing with rare diseases - David Gosar, PhD
Al Freedman, Family Support Coach | ScreenPlus and Cure MLD
Al Freedman, Family Support Coach | ScreenPlus and Cure MLD
Sherwood Park family loses daughter to rare disease, fights for sister’s treatment
Sherwood Park family loses daughter to rare disease, fights for sister’s treatment
Please Help Support Our Rare Disease Families like Susie Dugan
Please Help Support Our Rare Disease Families like Susie Dugan
Coordinating Care – Together Caring for Rare Disease
Coordinating Care – Together Caring for Rare Disease
Optimising rare disease healthcare and family support: a case study - Jayne Hughes
Optimising rare disease healthcare and family support: a case study - Jayne Hughes
Rare KC hosting a town hall meeting Monday to help families who have children with rare disorders
Rare KC hosting a town hall meeting Monday to help families who have children with rare disorders
Rare Disease Day 2025 official video
Rare Disease Day 2025 official video
Celebrating Caren Trailer - A #RareDisease (#SYNGAP1) Diagnosis 64 Years in the Making
Celebrating Caren Trailer - A #RareDisease (#SYNGAP1) Diagnosis 64 Years in the Making
Resources for Family Education & Support
Resources for Family Education & Support
Baby boy in Johnson City faces rare disease, family hopes to help others
Baby boy in Johnson City faces rare disease, family hopes to help others
SWAN Rare Disease Day Virtual Event 2022 - Dalal Baumgartner - Mother of a child with SATB2
SWAN Rare Disease Day Virtual Event 2022 - Dalal Baumgartner - Mother of a child with SATB2